Escalas utilizadas para la medición de la calidad de vida en pacientes con enfermedad cerebrovascular
DOI:
https://doi.org/10.28957/rcmfr.v26n1a6Palabras clave:
Accidente Cerebrovascular, Calidad de Vida, Rehabilitación, Servicios de Salud para Personas con DiscapacidadResumen
La enfermedad cerebrovascular se incrementa cada día con una incidencia global de
258/100.000 y con un aumento en las cifras de supervivientes que pasaron de 17,9
millones en 1990 a 33 millones en 2010; constituye una de las patologías que mayor impacto generan en la calidad de vida de los supervivientes, creando la necesidad de que esta sea evaluada, medida y tenida en cuenta para estudios de investigación, para generación de políticas públicas en salud y para crear estrategias de manejo que se adecúen a las necesidades expresadas por los pacientes.
Biografía del autor/a
Mario Alejandro Diaz Saavedra, Universidad de La Sabana
Residente de Medicina física y rehabilitación de la Universidad de La Sabana
Referencias bibliográficas
1. Béjot Y, Daubail B, Giroud M. Epidemiology of stroke and transient ischemic attacks: Current knowledge and perspectives. Revue
neurologique 2015; http://dx.doi.org/10.1016/j.neurol.2015.07.013
2. World Health Organization: Recommendations on Stroke prevention, diagnosis, and therapy: Report of the WHO Task Force on Stroke and other cerebrovascular disorders. Stroke.1989; 20:1407-1431.
3. Feigin V, Forouzanfar M, Krishnamurthi R, Mensah G, Connor M. Global and regional burden of stroke during 1990-2010: findings from the Global Burden of Disease Study 2010. Lancet. 2014 January 18; 383(9913): 245-254.
4. Carod-Artal F, Egido J. Quality of Life after Stroke: The Importance of a Good Recovery. Cerebrovasc Dis 2009; 27(suppl 1): 204-214. DOI: 10.1159/000200461
5. Hayes M, Beiser A, Kase C, Scaramucci A, D’Agostino R, et al. The Influence of Gender and Age on Disability Following Ischemic Stroke: The Framingham Study. Journal of Stroke and Cerebrovascular Diseases. 2003 (May-June); 12(3): 119-126.
6. López R, Vega F, Rodríguez C, Padilla D, Martínez M, et al. Actualizaciones en las escalas de medida para la calidad de vida y
funcionalidad del paciente con accidente cerebrovascular. INFAD Revista de Psicología. 2011;1(4): 57-64. ISSN: 0214-9877.
7. Roa L. Calidad de vida y discapacidad en la enfermedad cerebrovascular: una entidad olvidada. Editorial. Acta Neurol Colomb , 2011; 27.
8. Carod-Artal F. Escalas específicas para la evaluación de la calidad de vida en el ictus. Rev Neurol 2004; 39 (11): 1052-1062.
9. Owolabi M. What Are the Consistent Predictors of Generic and Specific Post-Stroke Health-Related Quality of Life?. Cerebrovasc Dis 2010;29:105-110. DOI:10.1159/000262305.
10. Burckhardt C, Anderson L. The Quality of Life Scale (QOLS): Reliability, Validity, and Utilization. Health Qual Life Outcomes. 2003;
1: 60. doi: 10.1186/1477-7525-1-60.
11. de Haan R, Aaronson N, Limburg M, Hewer R, van Crevel H. Measuring quality of life in stroke. Stroke. 1993 Feb;24(2):320-7.
12. Reddy S, Pulipaka S, Ramesh A. Assessment of Health Related Quality of Life in Stroke (Cerebrovascular Accidents) Patients. Am. J.
PharmTech Res. 2015; 5(6).
13. Li T, Lee Y, Lin C, Amidon R. Quality of life of primary caregivers of elderly with cerebrovascular disease or diabetes hospitalized for acute care: assessment of well-being and functioning using the SF-36 health questionnaire. Qual Life Res. 2004 Aug;13(6):1081-8.
14. Ferreira T, Freitas K, Melo M, Pereira K, da Silva S. Quality of life of caregivers for patients of cerebrovascular accidents: association of (socio-demographic) characteristics and burden. Rev. esc. enferm. USP. São Paulo Mar./Apr. 2015;49(2).
15. Carod-Artal F, Ferreira C, Stieven T, Menezes M. Self- and proxy-report agreement on the Stroke Impact Scale. Stroke. 2009; 40(10):
3308-3314.
16. Chou C. Determinants of the Health-related Quality of Life for Stroke Survivors. Journal of Stroke and Cerebrovascular Diseases. , 2015(March); 24(3): 655-662.
17. Kranèiukaitë D, Rastenytë D. Measurement of quality of life in stroke patients. Medicina (Kaunas). 2006; 42(9).
18. Dallmeijer A, Dekker J, Knol D, Kalmijn S., Schepers V. et al. Dimensional structure of the SF-36 in neurological patients. J Clin
Epidemiol. 2006; 59(5): 541-543.
19. Dorman P, Slattery J, Farrell B, Dennis M, Sandercock P. Qualitative comparison of the reliability of health status assessments with
the EuroQol and SF-36 questionnaires after stroke. United Kingdom Collaborators in the International Stroke Trial. Stroke. 1998;
29(1): 63-68.
20. Dorman P, Dennis M, Sandercock P. How do scores on the EuroQol relate to scores on the SF-36 after stroke? Stroke. 1999;
30(10): 2146-2151.
21. Hobart J, Williams L, Moran K, Thompson A. Quality of Life Measurement After Stroke. Uses and Abuses of the SF-36. Stroke.
2002;33:1348-1356.
22. Van Straten A, Haan R, Limburg M, Van den Bos G. Clinical Meaning of the Stroke- Adapted Sickness Impact Profile–30 and the Sickness Impact Profile–136. Stroke. 2000;31:2610-2615.
23. Alonso J, Anto J, Moreno C. Spanish Version of the Nottingham Health Profile: Translation and Preliminary Validity. AJPH 1990 June; 80(6).
24. Cabral D, Laurentino G, Damascena C, Faria C, Melo P, Teixeira L. Comparisons of the Nottingham Health Profile and the SF-36 health survey for the assessment of quality of life in individuals with chronic stroke. Rev Bras Fisioter, São Carlos. 2012 July/Aug; 16(4): 301-8.
25. Dorman P, Slattery J, Farrell B, Dennis M, Sandercock P. A randomised comparison of the EuroQol an International Stroke Trial.
BMJ. 1997; 315(7106): 461.
26. Dorman P, Waddell F, Slattery J, Dennis M, Sandercock P. Is the EuroQol a valid measure of health-related quality of life after stroke?
Stroke. 1997; 28(10): 1876-1882.
27. The EuroQol Group. EuroQol- a new facility for the measurement of health-related quality of life. Health Policy. 1990; 16: 199-206.
28. Euroqol.org [Internet]. Europe: Euroqol Group; 1987 [2016; citado 02 feb 2016]. Disponible en: http://www.euroqol.org/abouteq-
5d/eq-5d-nomenclature.html.
29. Fernández O, Ramírez E, Álvarez M, Buergo M. Validación de la escala de calidad de vida para el ictus (ECVI-38). Rev Neurol. 2008;
46 (3): 147-152.
30. Fernández O, Verdecia R, Álvarez M, Román Y, Ramírez E. Escala de calidad de vida para el ictus (ECVI-38): evaluación de su aceptabilidad, fiabilidad y validez. Rev Neurol. 2005; 41 (7): 391-398.
31. Carod-Artal F, González J, Egido J, Varela E. Propiedades métricas de la versión española del perfil de las consecuencias de la enfermedad de 30 ítems adaptado al ictus (SIP30-AI). Rev Neurol 2007; 45 (11): 647-654.
32. Duncan P, Wallace D, Lai S, Johnson D, Embretson S, Jacobs L. The Stroke Impact Scale Version 2.0 Evaluation of Reliability, Validity, and Sensitivity to Change. Stroke. 1999;30:2131-2140.
33. Carod-Artal F, Coral L, Trizotto D, Moreira M. The stroke impact scale 3.0: evaluation of acceptability, reliability, and validity of the Brazilian version. Stroke. 2008 ; 39(9):2477-2484.
34. Duncan P, Lai S, Tyler D, Perera S, Reker D, Studenski S. Evaluation of Proxy Responses to the Stroke Impact Scale. Stroke. 2002;33:2593-2599.
35. Williams L, Weinberger M, Harris L, Clark D, Biller J. Development of a Stroke-Specific Quality of Life Scale. Stroke. 1999;30:1362-1369.
36. Kerber K, Brown D, Skolarus L, Morgenstern L, Smith M, et al. Validation of the 12-Item Stroke-Specific Quality of Life Scale in a
Biethnic Stroke Population. Journal of Stroke and Cerebrovascular Diseases. 2013 (November); 22(8): 1270-1272.
37. Buck D, Jacoby A, Massey A, Steen N, Sharma A, Ford G. Development and Validation of the NEWSQOL®, the Newcastle Stroke-
Specific Quality of Life Measure. Cerebrovascular Diseases. Mar 2004; 17: 2-3; ProQuest pg. 143.
38. Lee H, Lee A, Choi H, Pyun S. Community Integration and Quality of Life in Aphasia after Stroke. Yonsei Med J 2015 Nov; 56(6):1694-1702.
39. Dancer, S., Brown, A. J., & Yanase, L. R. National Institutes of Health Stroke Scale reliable and valid in plain English. J Neurosci Nurs. 2009; 41(1): 2-5.
40. Duncan P, Jorgensen H, Wade D. Outcom measures in acute stroke trials: a systematic review and some recommendations to improve practice. Stroke. 2000; 31(6): 1429-1438.
41. Hilari K, Byng S, Lamping D, Smith S. Stroke and Aphasia Quality of Life Scale-39 (SAQOL-39). Evaluation of Acceptability, Reliability, and Validity. Stroke. 2003;34:1944-1950.
42. Doyle P, McNeil M, Bost J, Ross K, Wambaugh J, et al. The Burden of Stroke Scale (BOSS) provided valid, reliable, and responsive score estimates of functioning and wellbeing during the first year of recovery from stroke. Qual Life Res 2007; 16:1389-1398.
43. Coons S, Rao S, Keininger, Hays R. A comparative review of generic quality-of-life instruments. Pharmacoeconomics. 2000; 17(1): 13-35.
44. Quality of Life of Stable Stroke Survivors in Pakistan. U.S. National Institutes of Health. https://clinicaltrials.gov/ct2/show/NCT02351778
45. Lin K, Fu T, Wu C, Hsieh C. Assessing the Stroke-Specific Quality of Life for Outcome Measurement in Stroke Rehabilitation: Minimal Detectable Change and Clinically Important Difference. Health and Quality of Life Outcomes 2011; 9:5.
46. Hamedanic A, Wells C, Brass L, Kernan W, Viscoli C, et al. A Quality-of-Life Instrument for Young Hemorrhagic Stroke Patients. Stroke. 2001; 32:687-695.
47. Brock K, Goldie P, Greenwood K. Evaluating the effectiveness of stroke rehabilitation: choosing a discriminative measure. Arch Phys
Med Rehabil. 2002; 83(1): 92-99.
48. Carr J, Shepherd R, Nordholm L, Lynne D. Investigation of a new motor assessment scale for stroke patients. Phys Ther. 1985; 65(2): 175-180.
49. Duncan P, Bode R, Min L, Perera S. Rasch analysis of a new stroke-specific outcome scale: the Stroke Impact Scale. Arch Phys Med
Rehabil. 2003; 84(7): 950-963.
50. Ahmed S, Mayo N, Higgins J, Salbach N, Finch L, Wood-Dauphinee S. The Stroke Rehabilitation Assessment of Movement (STREAM): a comparison with other measures used to evaluate effects of stroke and rehabilitation. Phys Ther. 2003; 83(7):617-630.
neurologique 2015; http://dx.doi.org/10.1016/j.neurol.2015.07.013
2. World Health Organization: Recommendations on Stroke prevention, diagnosis, and therapy: Report of the WHO Task Force on Stroke and other cerebrovascular disorders. Stroke.1989; 20:1407-1431.
3. Feigin V, Forouzanfar M, Krishnamurthi R, Mensah G, Connor M. Global and regional burden of stroke during 1990-2010: findings from the Global Burden of Disease Study 2010. Lancet. 2014 January 18; 383(9913): 245-254.
4. Carod-Artal F, Egido J. Quality of Life after Stroke: The Importance of a Good Recovery. Cerebrovasc Dis 2009; 27(suppl 1): 204-214. DOI: 10.1159/000200461
5. Hayes M, Beiser A, Kase C, Scaramucci A, D’Agostino R, et al. The Influence of Gender and Age on Disability Following Ischemic Stroke: The Framingham Study. Journal of Stroke and Cerebrovascular Diseases. 2003 (May-June); 12(3): 119-126.
6. López R, Vega F, Rodríguez C, Padilla D, Martínez M, et al. Actualizaciones en las escalas de medida para la calidad de vida y
funcionalidad del paciente con accidente cerebrovascular. INFAD Revista de Psicología. 2011;1(4): 57-64. ISSN: 0214-9877.
7. Roa L. Calidad de vida y discapacidad en la enfermedad cerebrovascular: una entidad olvidada. Editorial. Acta Neurol Colomb , 2011; 27.
8. Carod-Artal F. Escalas específicas para la evaluación de la calidad de vida en el ictus. Rev Neurol 2004; 39 (11): 1052-1062.
9. Owolabi M. What Are the Consistent Predictors of Generic and Specific Post-Stroke Health-Related Quality of Life?. Cerebrovasc Dis 2010;29:105-110. DOI:10.1159/000262305.
10. Burckhardt C, Anderson L. The Quality of Life Scale (QOLS): Reliability, Validity, and Utilization. Health Qual Life Outcomes. 2003;
1: 60. doi: 10.1186/1477-7525-1-60.
11. de Haan R, Aaronson N, Limburg M, Hewer R, van Crevel H. Measuring quality of life in stroke. Stroke. 1993 Feb;24(2):320-7.
12. Reddy S, Pulipaka S, Ramesh A. Assessment of Health Related Quality of Life in Stroke (Cerebrovascular Accidents) Patients. Am. J.
PharmTech Res. 2015; 5(6).
13. Li T, Lee Y, Lin C, Amidon R. Quality of life of primary caregivers of elderly with cerebrovascular disease or diabetes hospitalized for acute care: assessment of well-being and functioning using the SF-36 health questionnaire. Qual Life Res. 2004 Aug;13(6):1081-8.
14. Ferreira T, Freitas K, Melo M, Pereira K, da Silva S. Quality of life of caregivers for patients of cerebrovascular accidents: association of (socio-demographic) characteristics and burden. Rev. esc. enferm. USP. São Paulo Mar./Apr. 2015;49(2).
15. Carod-Artal F, Ferreira C, Stieven T, Menezes M. Self- and proxy-report agreement on the Stroke Impact Scale. Stroke. 2009; 40(10):
3308-3314.
16. Chou C. Determinants of the Health-related Quality of Life for Stroke Survivors. Journal of Stroke and Cerebrovascular Diseases. , 2015(March); 24(3): 655-662.
17. Kranèiukaitë D, Rastenytë D. Measurement of quality of life in stroke patients. Medicina (Kaunas). 2006; 42(9).
18. Dallmeijer A, Dekker J, Knol D, Kalmijn S., Schepers V. et al. Dimensional structure of the SF-36 in neurological patients. J Clin
Epidemiol. 2006; 59(5): 541-543.
19. Dorman P, Slattery J, Farrell B, Dennis M, Sandercock P. Qualitative comparison of the reliability of health status assessments with
the EuroQol and SF-36 questionnaires after stroke. United Kingdom Collaborators in the International Stroke Trial. Stroke. 1998;
29(1): 63-68.
20. Dorman P, Dennis M, Sandercock P. How do scores on the EuroQol relate to scores on the SF-36 after stroke? Stroke. 1999;
30(10): 2146-2151.
21. Hobart J, Williams L, Moran K, Thompson A. Quality of Life Measurement After Stroke. Uses and Abuses of the SF-36. Stroke.
2002;33:1348-1356.
22. Van Straten A, Haan R, Limburg M, Van den Bos G. Clinical Meaning of the Stroke- Adapted Sickness Impact Profile–30 and the Sickness Impact Profile–136. Stroke. 2000;31:2610-2615.
23. Alonso J, Anto J, Moreno C. Spanish Version of the Nottingham Health Profile: Translation and Preliminary Validity. AJPH 1990 June; 80(6).
24. Cabral D, Laurentino G, Damascena C, Faria C, Melo P, Teixeira L. Comparisons of the Nottingham Health Profile and the SF-36 health survey for the assessment of quality of life in individuals with chronic stroke. Rev Bras Fisioter, São Carlos. 2012 July/Aug; 16(4): 301-8.
25. Dorman P, Slattery J, Farrell B, Dennis M, Sandercock P. A randomised comparison of the EuroQol an International Stroke Trial.
BMJ. 1997; 315(7106): 461.
26. Dorman P, Waddell F, Slattery J, Dennis M, Sandercock P. Is the EuroQol a valid measure of health-related quality of life after stroke?
Stroke. 1997; 28(10): 1876-1882.
27. The EuroQol Group. EuroQol- a new facility for the measurement of health-related quality of life. Health Policy. 1990; 16: 199-206.
28. Euroqol.org [Internet]. Europe: Euroqol Group; 1987 [2016; citado 02 feb 2016]. Disponible en: http://www.euroqol.org/abouteq-
5d/eq-5d-nomenclature.html.
29. Fernández O, Ramírez E, Álvarez M, Buergo M. Validación de la escala de calidad de vida para el ictus (ECVI-38). Rev Neurol. 2008;
46 (3): 147-152.
30. Fernández O, Verdecia R, Álvarez M, Román Y, Ramírez E. Escala de calidad de vida para el ictus (ECVI-38): evaluación de su aceptabilidad, fiabilidad y validez. Rev Neurol. 2005; 41 (7): 391-398.
31. Carod-Artal F, González J, Egido J, Varela E. Propiedades métricas de la versión española del perfil de las consecuencias de la enfermedad de 30 ítems adaptado al ictus (SIP30-AI). Rev Neurol 2007; 45 (11): 647-654.
32. Duncan P, Wallace D, Lai S, Johnson D, Embretson S, Jacobs L. The Stroke Impact Scale Version 2.0 Evaluation of Reliability, Validity, and Sensitivity to Change. Stroke. 1999;30:2131-2140.
33. Carod-Artal F, Coral L, Trizotto D, Moreira M. The stroke impact scale 3.0: evaluation of acceptability, reliability, and validity of the Brazilian version. Stroke. 2008 ; 39(9):2477-2484.
34. Duncan P, Lai S, Tyler D, Perera S, Reker D, Studenski S. Evaluation of Proxy Responses to the Stroke Impact Scale. Stroke. 2002;33:2593-2599.
35. Williams L, Weinberger M, Harris L, Clark D, Biller J. Development of a Stroke-Specific Quality of Life Scale. Stroke. 1999;30:1362-1369.
36. Kerber K, Brown D, Skolarus L, Morgenstern L, Smith M, et al. Validation of the 12-Item Stroke-Specific Quality of Life Scale in a
Biethnic Stroke Population. Journal of Stroke and Cerebrovascular Diseases. 2013 (November); 22(8): 1270-1272.
37. Buck D, Jacoby A, Massey A, Steen N, Sharma A, Ford G. Development and Validation of the NEWSQOL®, the Newcastle Stroke-
Specific Quality of Life Measure. Cerebrovascular Diseases. Mar 2004; 17: 2-3; ProQuest pg. 143.
38. Lee H, Lee A, Choi H, Pyun S. Community Integration and Quality of Life in Aphasia after Stroke. Yonsei Med J 2015 Nov; 56(6):1694-1702.
39. Dancer, S., Brown, A. J., & Yanase, L. R. National Institutes of Health Stroke Scale reliable and valid in plain English. J Neurosci Nurs. 2009; 41(1): 2-5.
40. Duncan P, Jorgensen H, Wade D. Outcom measures in acute stroke trials: a systematic review and some recommendations to improve practice. Stroke. 2000; 31(6): 1429-1438.
41. Hilari K, Byng S, Lamping D, Smith S. Stroke and Aphasia Quality of Life Scale-39 (SAQOL-39). Evaluation of Acceptability, Reliability, and Validity. Stroke. 2003;34:1944-1950.
42. Doyle P, McNeil M, Bost J, Ross K, Wambaugh J, et al. The Burden of Stroke Scale (BOSS) provided valid, reliable, and responsive score estimates of functioning and wellbeing during the first year of recovery from stroke. Qual Life Res 2007; 16:1389-1398.
43. Coons S, Rao S, Keininger, Hays R. A comparative review of generic quality-of-life instruments. Pharmacoeconomics. 2000; 17(1): 13-35.
44. Quality of Life of Stable Stroke Survivors in Pakistan. U.S. National Institutes of Health. https://clinicaltrials.gov/ct2/show/NCT02351778
45. Lin K, Fu T, Wu C, Hsieh C. Assessing the Stroke-Specific Quality of Life for Outcome Measurement in Stroke Rehabilitation: Minimal Detectable Change and Clinically Important Difference. Health and Quality of Life Outcomes 2011; 9:5.
46. Hamedanic A, Wells C, Brass L, Kernan W, Viscoli C, et al. A Quality-of-Life Instrument for Young Hemorrhagic Stroke Patients. Stroke. 2001; 32:687-695.
47. Brock K, Goldie P, Greenwood K. Evaluating the effectiveness of stroke rehabilitation: choosing a discriminative measure. Arch Phys
Med Rehabil. 2002; 83(1): 92-99.
48. Carr J, Shepherd R, Nordholm L, Lynne D. Investigation of a new motor assessment scale for stroke patients. Phys Ther. 1985; 65(2): 175-180.
49. Duncan P, Bode R, Min L, Perera S. Rasch analysis of a new stroke-specific outcome scale: the Stroke Impact Scale. Arch Phys Med
Rehabil. 2003; 84(7): 950-963.
50. Ahmed S, Mayo N, Higgins J, Salbach N, Finch L, Wood-Dauphinee S. The Stroke Rehabilitation Assessment of Movement (STREAM): a comparison with other measures used to evaluate effects of stroke and rehabilitation. Phys Ther. 2003; 83(7):617-630.
Cómo citar
1.
Diaz Saavedra MA, Gómez G. MC. Escalas utilizadas para la medición de la calidad de vida en pacientes con enfermedad cerebrovascular. Rev. Colomb. Med. Fis. Rehabil. [Internet]. 24 de octubre de 2016 [citado 25 de abril de 2024];26(1):64-7. Disponible en: https://revistacmfr.org/index.php/rcmfr/article/view/150
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Publicado
2016-10-24
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Revisión sistemática
