Rehabilitación en Salud y Calidad de Vida relacionada con la salud
Palabras clave:
calidad de vida, salud, rehabilitación, SF-36, WHO-DAS IIResumen
Esta revisión tiene 3 partes: la primera, es una aproximación teórica a los conceptos de calidad de vida; la segunda aborda la llamada calidad de vida relacionada con la salud y los problemas, obstáculos, soluciones y desarrollos que hay al medirla; y la tercera incluye la visión que hay desde la Rehabilitación en salud sobre la valoración de la calidad de vida medida como desenlace en la investigación y en la práctica clínica. Se destaca el marco conceptual de la Clasificación lnternacional del Funcionamiento, de la Discapacidad y de la Salud, que puede usarse para conectar la evaluación de la calidad de vida con instrumentos genéricos y la valoración de la discapacidad; se revisan dos instrumentos: el Cuestionario de Salud SF-36 y el Cuestionario para la Evaluación de la Discapacidad de la OMS, el WHO-DAS II.Referencias bibliográficas
Parfit D. Reasons and Persons, 1984. Citado por Dan Brock, Medidas de la calidad de vida en el cuidado de la salud y la ética médica. EN: Nussbaum MC, Sen A, compiladores. La calidad de vida. México: The United Nations University, Fondo de Cultura Económica, 1998:136.
Dijkers M. Quality of life after spinal cord injury: a meta analysis of the effects of disablement components. spinal Cord 1997; 35:829-840.
Brock D. Medidas de calidad de vida en el cuidado de la salud y la ética médica. EN: Nussbaum MC, Sen A, compiladores. La calidad de vida. México: The United Nations University, Fondo de Cultura Económica, 1998:135-181.
Lugo LH, Garcia HI, Restrepo C. Calidad de vida y calidad de vida relacionada con la atención en salud. latreia 2002; 1 5(2):96-1 02.
Sen A. Capacidad y bienestar. EN: Nussbaum MC, Sen A, compiladores. La calidad de vida. México: The United Nations University, Fondo de Cultura Económica, 1998:54-83.
De Souza MC, de Araujo ZM, Marchiori P. Qualidade de vida e saúde: um debate necessário. Ciéncia & Saúde Coletiva 2000; 5(1 ):7-18
Rufino N. Qualidade de vida: compromiso histórico da epidemiología. EN: Lima MFL, Souza RP. Qualidade de vida: compromiso histórico da epidemiología. Coopmed/Abrasco, Belo Horizonte, 1994: 11-18.
Cabrera E, García V, agostini M. Modelo teórico-metodológico para evaluar la calidad de vida. lnforme de resultado. La Habana, Centro de investigaciones Psicológicas y Sociológicas 1998.
Victoria CR. La categoría Bienestar Psicológico. Su relación con otras categorías sociales. Revista Cubana de Medicina General lntegral 2000; 16(6):586-592.
Victoria CR. Calidad de vida: aspectos teóricos y metodológico. Buenos Aires: Paidós, 2008:144 p.
DeBoer JB, Van Dam FS, Sprangers MAG. Health -related-quality-of-life evaluation in HIV-infected patients. Pharmacoeconomics 1995; 8:291-304.
0 'Connor R. Development of the health effects scales. Working Paper 43, NHMRC National Centre for Health Program Evaluation 1995.
Gianchello A. Health outcomes research in Hispanics/latinos. Journal of medical Systems 1996; 21 (5):235-254.
World Health Organization. WHO meeting on the assessment of quality of life in health care. Geneva: IWHO· MNH/PSF/91.4), 1991.
Schipper H, Clinch JJ, Olweny CL. Quality of life studies: Definitions and conceptual Issues. En: Spilker Bert.Quality of life and Pharmacoeconomics in Clinical trials.2nd ed. Lippincott-Raven Publishers, 1990; 11-23.
Revicki DA. Health related quality of life in the evaluation of medical therapy for -chronic illness. The Journal of Family Practice 1989; 29:377.
Murdaug C. Health-related quality of life as an outcome in organizational research. Med Care 1997; 35: NS41-NS48.
Spilker Bert. Introduction. En: Spilker Bert. Quality of Life and Pharmacoeconomics in Clinical trials. 2 ed. Lippincott- Raven Publishers, 1996; 1-10.
Patrick DL, Erickson P. What constitutes quality of life? Concepts and dimensions. Clin Nutr 1988; 7: 53-63.
Guyatt GH, Feeny DH, Patrick DL. Measuring health related quality of life? Ann Intern Med 1993; 118: 622-629.
Testa MA, Simonson DC. Assessment pf quality-of-life outcomes. The New EnglanGl .Journal of Medicine 1996; 334(13): 835-840.
Brousse C, Boisaubert B. Quality of life and scales measuring. Rev Med lnterna 2007; 28(7):458-462.
Consiglio E. Medici6n de Ia calidad de vida relacionada con la salud (CVRS). Revista del lnstituto de Higiene y Medicina Social .2000; 4 (2): 9-15.
Thompson D, Yu C. Quality of life in patients with coronary heart disease: I. .LI.ssessment tools. Health Quality of Life Outcomes 2000; 1 (1 ):42
Sigerist H. Hitos en la Historia de la Salud Pública. México: Siglo Veintiuno Editores, 1998; sa. Ed. 104 p.
Bergner M. Quality of life, health status and clinical research. Medical Care 1989; 27 (suppl):S148-S 1 56.
Garratt A, Schmidt L, Mackintosh A, Fitzpatrick R. Quality of life measurement: bibliographic study. BMJ 2002;324;1417-1421.
Badia X, Carne X. La evaluación de la calidad de vida en el contexto del ensayo clínico. Medical Care 1998; 11 0: 550-556.
Murdaugh C. Health-related quality of life as an outcome in organizational research. Medical Care 1997; 35: NS41-NS48.
Neymark N, Kiebert W, Trofs K, Davies L, Fayers P, Hilliner B, et al. Methodological and statistical issues of quality of life (QoL) and economic evaluation in cancer clinical trials: report of a Workshop. Eur J Cancer 1998; 34: 1317-1333.
Glasziou PP, Cole BF, Geiber RD, Hilden J, Simes RJ. Quality adjusted survival analysis with repeated quality of life measures. Stat Med 1998; 17: 1215-1229.
Streiner DL, Norman GR. Health measurement scales. New York: Oxford University Press, 2008; Sa. ed. 430 p.
Martínez R. Psicometría: teoría de los tests psicológicos y educativos. Madrid: Editorial Síntesis, 1996. 814 p.
Auquier P, SimEoone MC, Mendizabal H. Approches théoriques et méthodologiques de la qualité de vie liée á la santé. Revue Prevenir 1997; 33:78-86.
Evans RW. The quality of life of patients with end stage renal disease. New England Journal of Medicine 1985;312:553-559.
Bergner M, Bobbit RA, Carter WB, Gilson BS. The sickness impact profile: development and final revision of a health status measure. Medical Care 1981; 19: 787-805.
Hunt SM, McEwen J, McKenna SP. Measuring health stats: a new tool for clinicians and epidemiologists. J Royal Coli Gen Pract 1985;35: 185-88.
Ware JE Jr, Sherbourne CD. The MOS 36-ftem short form health survey: I. Conceptual framework and item selection. Med Care 1992;30(6):473-483.
McHorney CA. Ware JE Jr, Raczek AE. The MOS 36-ítem short-form health survey (SF-36): II. Psychometric and clinical tests of validity in measuring physical and mental health constructs. Med Care 993;31 (3):247-263.
The WHOQOL Group. The World Health Organization Quality of Life Assesment (WHOQOL): Development and general psychometric properties. Soc. Sci. Med 1998; 46(12): 1569-1 585.
Anderson RT, Aaronson NK, Leplege AP, Wlkin D. International Use and aplication of Generic HealthRelated Quality of Life Instruments. En: Spilker Bert. Quality of Life and Pharmacoeconos in Clinical trials 2 ed. Lippincott- Raven Publishers, 1990; 613-623.
Kaplan RM, Anderson JP. The general health policy model: an integrated approach. En: Spilker Bert. Quality of Life and Pharmacoeconomics in Clinical trials. 2 ed. Lippincott- Raven Publishers, 1996; 309-322.
Furlong WJ, Feeny DH, Torrance GW, Barr RD. The Health Utility Index (HUI) system for assessing health-related quality of life in clinical studies. Annals of Medicine 2001 ;33:375-384.
Horsman J, Furlong W, Feeny D, Torrance G. The Health Utility Index (HUI): concepts, measurement properties and applications. Health and Quality of Life in Outcomes 2003; 1:54.
EuroQol Group. EuroQol - a new facility for the measurement of health-related quality of life. Health Policy 1990; 16: 199-208.
Kind P. The EuroQol instrument: an index of healthrelated quality of life. En: Spilker Bert. Quality of Life and Pharmacoeconomics in Clinical trials. 2 ed. LippincottRaven Publishers, 1996; 191-201.
Brazier J, Roberts J, Deverill M. The estimation of a preference-based measure of health from the SF-36. Journal of Health Economics 2002; 21 :271-292.
Velarde E .. Avila C. Evaluación de la calidad de vida. Salud Pública de México 2002; 44(4):349-358.
Brown I, Renwick R, Nagler M. En: Renwick R, Brown I, Nagler M (editores). Quality of life in health promotion and rehabilitation: conceptual approaches, issues, and applications. Thousand Oaks: Sage, 1996. 437 p.
Raphael D. Defining quality of life. En: Renwick R, Brown I, Nagler M (editores). Quality of life in health promotion and rehabilitation: conceptual approaches, issues, and applications. Thousand Oaks: Sage, 1996; 146-165.
The World Health Organization. International Classification of Functioning, Disability and Health. Geneva 2001.
Stucki G, Cieza A, Melvin J. The International Classification of Functioning, Disability and health: a unifying model dor the conceptual descripction of the Rehabilitation strategy. J Rehabil Med 2007; 39:279-285.
Ayuso M, Nieto M, Sanchez J, Vazquez JL. La Clasificación lnternacional del Funcionamiento, la Discapacidad y la Salud. Medicina Clínica 2006; 126 (12):461-466.
Organización Mundial de la Salud. Clasificación lnternacional del Funcionamiento, de la Discapacidad y de la Salud: CIF. Madrid: lnstituto de Migraciones y Servicios Sociales, IMSERSO 2001.
Andresen EM, Meyers AR. Health-related quality of life outcomes measures. Arch Phys Med Rehabil 2000; 81 (suppl 2):S30-S45.
Ware JE Jr. SF-36 Health Survey Update. Spine 2000;25(24):3130-3139.
Alonso J, Prieto L, Anto JM. La versión española del SF-36 Health Survey (Cuestionario de Salud SF-36): Un instrumento para la medida de los resultados clínicos. Med Clin (Bare) 1995; 104(20): 771-776.
Lugo LH, Garda HI, Restrepo C. Confiabilidad del Cuestionario de calidad de vida en Salud SF-36 en Medellín (Colombia). Revista Facultad Nacional de Salud Publica 2006; 24(2): 37-50.
Keller SD, Ware JE J r, Hatoum HT, Kong SX. The SF-36 Arthritis-Specific Health Index (ASH I): II. Tests of validity in four clinical trials. Medical Care 1999;37(5 Suppl):60.
Kosinski M, Keller SD, Ware JE Jr, Hatoum HT, Kong SX. The SF-36 Health Survey as a generic outcome measure in clinical trials of patients with osteoarthritis and rheumatoid arthritis: relative validity of scales in
relation to clinical measures of arthritis Medical Care 1999; 37(5 Suppl): 3-39.
Thumboo J, Fong KY. Ng TP. Leong KH, Feng PH, Boey ML. Initial construct cross-cultural validation of the Short Form 36 for quality of life assessment of systemic lupus erythematosus patients in Singapore. Annals of the Academy of Medicine 1997;26(3):282-284.
Kvien TK, Kaasa S, Smedstad LM. Performance of the Norwegian SF-36 Health Survey in patients with rheumatoid arthritis. II. A comparison of the SF-36 with disease-specific measures. Journal of Clinical Epidemiology 1998; 51(11):1077-1086.
Hermann BP. Vickrey B, Hays RD, Cramer J, Devinsky 0, Meador K, et al. A comparison of health-related quality of life in patients with epilepsy, diabetes and multiple sclerosis. Epilepsy Research 1996; 25(2): 113-118.
The World Health Organization. World Health Organization Disablement Assessment Schedule II, WHO-DAS II. Geneva 2001.
Vazquez JL, Herrera S, Vazquez E, Gaite L. Cuestionario para la evaluación de la discapacidad de la Organización Mundial de la Salud (Versión española del World Health Organization Disability Assessment Schedule II) WHODAS II. Madrid: Ministerio de Trabajo y Asuntos Sociales,2006. 197 p
Dijkers M. Quality of life after spinal cord injury: a meta analysis of the effects of disablement components. spinal Cord 1997; 35:829-840.
Brock D. Medidas de calidad de vida en el cuidado de la salud y la ética médica. EN: Nussbaum MC, Sen A, compiladores. La calidad de vida. México: The United Nations University, Fondo de Cultura Económica, 1998:135-181.
Lugo LH, Garcia HI, Restrepo C. Calidad de vida y calidad de vida relacionada con la atención en salud. latreia 2002; 1 5(2):96-1 02.
Sen A. Capacidad y bienestar. EN: Nussbaum MC, Sen A, compiladores. La calidad de vida. México: The United Nations University, Fondo de Cultura Económica, 1998:54-83.
De Souza MC, de Araujo ZM, Marchiori P. Qualidade de vida e saúde: um debate necessário. Ciéncia & Saúde Coletiva 2000; 5(1 ):7-18
Rufino N. Qualidade de vida: compromiso histórico da epidemiología. EN: Lima MFL, Souza RP. Qualidade de vida: compromiso histórico da epidemiología. Coopmed/Abrasco, Belo Horizonte, 1994: 11-18.
Cabrera E, García V, agostini M. Modelo teórico-metodológico para evaluar la calidad de vida. lnforme de resultado. La Habana, Centro de investigaciones Psicológicas y Sociológicas 1998.
Victoria CR. La categoría Bienestar Psicológico. Su relación con otras categorías sociales. Revista Cubana de Medicina General lntegral 2000; 16(6):586-592.
Victoria CR. Calidad de vida: aspectos teóricos y metodológico. Buenos Aires: Paidós, 2008:144 p.
DeBoer JB, Van Dam FS, Sprangers MAG. Health -related-quality-of-life evaluation in HIV-infected patients. Pharmacoeconomics 1995; 8:291-304.
0 'Connor R. Development of the health effects scales. Working Paper 43, NHMRC National Centre for Health Program Evaluation 1995.
Gianchello A. Health outcomes research in Hispanics/latinos. Journal of medical Systems 1996; 21 (5):235-254.
World Health Organization. WHO meeting on the assessment of quality of life in health care. Geneva: IWHO· MNH/PSF/91.4), 1991.
Schipper H, Clinch JJ, Olweny CL. Quality of life studies: Definitions and conceptual Issues. En: Spilker Bert.Quality of life and Pharmacoeconomics in Clinical trials.2nd ed. Lippincott-Raven Publishers, 1990; 11-23.
Revicki DA. Health related quality of life in the evaluation of medical therapy for -chronic illness. The Journal of Family Practice 1989; 29:377.
Murdaug C. Health-related quality of life as an outcome in organizational research. Med Care 1997; 35: NS41-NS48.
Spilker Bert. Introduction. En: Spilker Bert. Quality of Life and Pharmacoeconomics in Clinical trials. 2 ed. Lippincott- Raven Publishers, 1996; 1-10.
Patrick DL, Erickson P. What constitutes quality of life? Concepts and dimensions. Clin Nutr 1988; 7: 53-63.
Guyatt GH, Feeny DH, Patrick DL. Measuring health related quality of life? Ann Intern Med 1993; 118: 622-629.
Testa MA, Simonson DC. Assessment pf quality-of-life outcomes. The New EnglanGl .Journal of Medicine 1996; 334(13): 835-840.
Brousse C, Boisaubert B. Quality of life and scales measuring. Rev Med lnterna 2007; 28(7):458-462.
Consiglio E. Medici6n de Ia calidad de vida relacionada con la salud (CVRS). Revista del lnstituto de Higiene y Medicina Social .2000; 4 (2): 9-15.
Thompson D, Yu C. Quality of life in patients with coronary heart disease: I. .LI.ssessment tools. Health Quality of Life Outcomes 2000; 1 (1 ):42
Sigerist H. Hitos en la Historia de la Salud Pública. México: Siglo Veintiuno Editores, 1998; sa. Ed. 104 p.
Bergner M. Quality of life, health status and clinical research. Medical Care 1989; 27 (suppl):S148-S 1 56.
Garratt A, Schmidt L, Mackintosh A, Fitzpatrick R. Quality of life measurement: bibliographic study. BMJ 2002;324;1417-1421.
Badia X, Carne X. La evaluación de la calidad de vida en el contexto del ensayo clínico. Medical Care 1998; 11 0: 550-556.
Murdaugh C. Health-related quality of life as an outcome in organizational research. Medical Care 1997; 35: NS41-NS48.
Neymark N, Kiebert W, Trofs K, Davies L, Fayers P, Hilliner B, et al. Methodological and statistical issues of quality of life (QoL) and economic evaluation in cancer clinical trials: report of a Workshop. Eur J Cancer 1998; 34: 1317-1333.
Glasziou PP, Cole BF, Geiber RD, Hilden J, Simes RJ. Quality adjusted survival analysis with repeated quality of life measures. Stat Med 1998; 17: 1215-1229.
Streiner DL, Norman GR. Health measurement scales. New York: Oxford University Press, 2008; Sa. ed. 430 p.
Martínez R. Psicometría: teoría de los tests psicológicos y educativos. Madrid: Editorial Síntesis, 1996. 814 p.
Auquier P, SimEoone MC, Mendizabal H. Approches théoriques et méthodologiques de la qualité de vie liée á la santé. Revue Prevenir 1997; 33:78-86.
Evans RW. The quality of life of patients with end stage renal disease. New England Journal of Medicine 1985;312:553-559.
Bergner M, Bobbit RA, Carter WB, Gilson BS. The sickness impact profile: development and final revision of a health status measure. Medical Care 1981; 19: 787-805.
Hunt SM, McEwen J, McKenna SP. Measuring health stats: a new tool for clinicians and epidemiologists. J Royal Coli Gen Pract 1985;35: 185-88.
Ware JE Jr, Sherbourne CD. The MOS 36-ftem short form health survey: I. Conceptual framework and item selection. Med Care 1992;30(6):473-483.
McHorney CA. Ware JE Jr, Raczek AE. The MOS 36-ítem short-form health survey (SF-36): II. Psychometric and clinical tests of validity in measuring physical and mental health constructs. Med Care 993;31 (3):247-263.
The WHOQOL Group. The World Health Organization Quality of Life Assesment (WHOQOL): Development and general psychometric properties. Soc. Sci. Med 1998; 46(12): 1569-1 585.
Anderson RT, Aaronson NK, Leplege AP, Wlkin D. International Use and aplication of Generic HealthRelated Quality of Life Instruments. En: Spilker Bert. Quality of Life and Pharmacoeconos in Clinical trials 2 ed. Lippincott- Raven Publishers, 1990; 613-623.
Kaplan RM, Anderson JP. The general health policy model: an integrated approach. En: Spilker Bert. Quality of Life and Pharmacoeconomics in Clinical trials. 2 ed. Lippincott- Raven Publishers, 1996; 309-322.
Furlong WJ, Feeny DH, Torrance GW, Barr RD. The Health Utility Index (HUI) system for assessing health-related quality of life in clinical studies. Annals of Medicine 2001 ;33:375-384.
Horsman J, Furlong W, Feeny D, Torrance G. The Health Utility Index (HUI): concepts, measurement properties and applications. Health and Quality of Life in Outcomes 2003; 1:54.
EuroQol Group. EuroQol - a new facility for the measurement of health-related quality of life. Health Policy 1990; 16: 199-208.
Kind P. The EuroQol instrument: an index of healthrelated quality of life. En: Spilker Bert. Quality of Life and Pharmacoeconomics in Clinical trials. 2 ed. LippincottRaven Publishers, 1996; 191-201.
Brazier J, Roberts J, Deverill M. The estimation of a preference-based measure of health from the SF-36. Journal of Health Economics 2002; 21 :271-292.
Velarde E .. Avila C. Evaluación de la calidad de vida. Salud Pública de México 2002; 44(4):349-358.
Brown I, Renwick R, Nagler M. En: Renwick R, Brown I, Nagler M (editores). Quality of life in health promotion and rehabilitation: conceptual approaches, issues, and applications. Thousand Oaks: Sage, 1996. 437 p.
Raphael D. Defining quality of life. En: Renwick R, Brown I, Nagler M (editores). Quality of life in health promotion and rehabilitation: conceptual approaches, issues, and applications. Thousand Oaks: Sage, 1996; 146-165.
The World Health Organization. International Classification of Functioning, Disability and Health. Geneva 2001.
Stucki G, Cieza A, Melvin J. The International Classification of Functioning, Disability and health: a unifying model dor the conceptual descripction of the Rehabilitation strategy. J Rehabil Med 2007; 39:279-285.
Ayuso M, Nieto M, Sanchez J, Vazquez JL. La Clasificación lnternacional del Funcionamiento, la Discapacidad y la Salud. Medicina Clínica 2006; 126 (12):461-466.
Organización Mundial de la Salud. Clasificación lnternacional del Funcionamiento, de la Discapacidad y de la Salud: CIF. Madrid: lnstituto de Migraciones y Servicios Sociales, IMSERSO 2001.
Andresen EM, Meyers AR. Health-related quality of life outcomes measures. Arch Phys Med Rehabil 2000; 81 (suppl 2):S30-S45.
Ware JE Jr. SF-36 Health Survey Update. Spine 2000;25(24):3130-3139.
Alonso J, Prieto L, Anto JM. La versión española del SF-36 Health Survey (Cuestionario de Salud SF-36): Un instrumento para la medida de los resultados clínicos. Med Clin (Bare) 1995; 104(20): 771-776.
Lugo LH, Garda HI, Restrepo C. Confiabilidad del Cuestionario de calidad de vida en Salud SF-36 en Medellín (Colombia). Revista Facultad Nacional de Salud Publica 2006; 24(2): 37-50.
Keller SD, Ware JE J r, Hatoum HT, Kong SX. The SF-36 Arthritis-Specific Health Index (ASH I): II. Tests of validity in four clinical trials. Medical Care 1999;37(5 Suppl):60.
Kosinski M, Keller SD, Ware JE Jr, Hatoum HT, Kong SX. The SF-36 Health Survey as a generic outcome measure in clinical trials of patients with osteoarthritis and rheumatoid arthritis: relative validity of scales in
relation to clinical measures of arthritis Medical Care 1999; 37(5 Suppl): 3-39.
Thumboo J, Fong KY. Ng TP. Leong KH, Feng PH, Boey ML. Initial construct cross-cultural validation of the Short Form 36 for quality of life assessment of systemic lupus erythematosus patients in Singapore. Annals of the Academy of Medicine 1997;26(3):282-284.
Kvien TK, Kaasa S, Smedstad LM. Performance of the Norwegian SF-36 Health Survey in patients with rheumatoid arthritis. II. A comparison of the SF-36 with disease-specific measures. Journal of Clinical Epidemiology 1998; 51(11):1077-1086.
Hermann BP. Vickrey B, Hays RD, Cramer J, Devinsky 0, Meador K, et al. A comparison of health-related quality of life in patients with epilepsy, diabetes and multiple sclerosis. Epilepsy Research 1996; 25(2): 113-118.
The World Health Organization. World Health Organization Disablement Assessment Schedule II, WHO-DAS II. Geneva 2001.
Vazquez JL, Herrera S, Vazquez E, Gaite L. Cuestionario para la evaluación de la discapacidad de la Organización Mundial de la Salud (Versión española del World Health Organization Disability Assessment Schedule II) WHODAS II. Madrid: Ministerio de Trabajo y Asuntos Sociales,2006. 197 p
Cómo citar
1.
García HI, Lugo Agudelo LH. Rehabilitación en Salud y Calidad de Vida relacionada con la salud. Rev. Colomb. Med. Fis. Rehabil. [Internet]. 24 de mayo de 2012 [citado 25 de abril de 2024];19(1):38-4. Disponible en: https://revistacmfr.org/index.php/rcmfr/article/view/44
Descargas
Los datos de descargas todavía no están disponibles.
