Pediatric rehabilitation in times of Covid-19: Challenges and opportunities during the pandemic
DOI:
https://doi.org/10.28957/rcmfr.v30spa11Keywords:
Rehabilitation, Disabled Children, Adolescent, ICF-CY, Telerehabilitation, Covid-19.Abstract
Based on the conceptual model proposed in the International Classification of Functioning, Disability, and Health (ICF), specifically in itschildren and adolescents’ version, it is proposed that programs and services for the pediatric population with disabilities include different dimensions, particularly aspects related to participation, the elimination of barriers and frameworks that focus on function and independence in the child’s daily activities. Based on this premise and on the recommendations of different authors. El Comité de Rehabilitación de Antioquia, in the city of Medellín - Colombia, has been implementing a care model that has as itscore the achievement of independence in the activities of dailylife and the promotion of participation. This paper presents the programs that have been derived from this model. The current pandemic due to COVID - 19 and the quarantine in the country have revealed the importance of telerehabilitation, the defense of the rights of children with disabilities, and care models that are centered on the family and the context. This article also presents a proposed agenda that allows transforming the models of pediatric rehabilitation care and that takes into account the learning that has been generated during this period of health emergency due to Covid-19.References
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18. Löwing K, Bexelius A, Brogren Carlberg E. Activity Focused and Goal Directed Therapy for Children With Cerebral Palsy—Do Goals Make a Difference?. Disabil Rehabil 2009;31(22):1808-1816. Disponible en: https://doi.org/10.1080/09638280902822278
19. Quintero CA. Rehabilitation as an instrument of peace: The case of the committee of rehabilitation a non- government organisation in the city of Medellin- Colombia. World Federation of Occupational Therapists Bulletin. 2016;72(2):91-94 Disponible en: http://doi.org/10.1080/14473828.2016.1222156
20. Heerkens Y, Weerd M, Huber M, Brower C. The ICH scheme needs revision. WHO Family of International Classifications Network Anual Meeting 2015 [Internet]. Poster. Manchester, United Kingdom. 2015[citado 2020 julio 15]. Disponible en: https://www.who.int/classifications/network/WHOFICNetworkAnnualRport2015.pdf?ua=1
21. Darrah J, Law MC, Pollock N, Wilson B, Russell DJ, Walter SD, et al. Context Therapy: A New Intervention Approach for Children With Cerebral Palsy. Dev Med Child Neurol. 2011;53(7):615-620. Disponible en: http://doi.org/10.1111/j.1469-8749.2011.03959.x
22. Morgan C, Novak I, Dale RC, Badawi N. Optimising motor learning in infants at high risk of cerebral palsy: a pilot study. BMC Pediatr. 2015;15:30. Disponible en: http://doi.org/10.1186/s12887-015-347-2
23. Ziegler SA, Dirks T, Hadders-Algra M. Coaching in early physical therapy intervention: the COPCA program as an example of translation of theory into practice. Disabil Rehabil. 2019;41(15):1846-854. Disponible en: http://doi.org/10.1080/09638288.2018.1448468
24. Ketelaar M, Kruijsen AJ, Verschuren O, Jongmans MJ, Gorter JW, Verheijden J, et al. LEARN 2 MOVE 2-3: A Randomized Controlled Trial on the Efficacy of Child-Focused Intervention and Context-Focused Intervention in Preschool Children With Cerebral Palsy. BMC Pediatr. 2010;10:80. Disponible en: http://doi.org/10.1186/1471-2431-10-80
25. Morgan C, Novak I, Dale RC, Guzzetta A, Badawi N. Single Blind Randomised Controlled Trial of GAME (Goals - Activity - Motor Enrichment) in Infants at High Risk of Cerebral Palsy. Res Dev Disabil. 2016;55:256-267. Disponible en: http://doi.org/10.1016/j.ridd.2016.04.005
26. Rosenbaum P, Gorter JW. The ‘F-words’ in childhood disability: I swear this is how we should think! Child Care Health Dev 2012;38:457–463. Disponible en: http://doi.org/10.1111/j.1365-2214.2011.01338.x 4
27. Rosenbaum P, Gorter JW. Artículo relevante para el desarrollo de la especialidad: Las ‘Palabras-F` en discapacidad infantil: ¡Juro que así es como deberíamos pensar! Rev Col Med Fis Rehab 2014;24(1):16-26. Disponible en: http://www.revistacmfr.org/index.php/rcmfr/article/view/96/79
28. Rauch A, Cieza A, Stucki G. How to Apply the International Classification of Functioning, Disability and Health (ICF) for Rehabilitation Management in Clinical Practice. Eur J Phys Rehabil Med. 2008;44(3):329-342. PMID: 18762742. Disponible en:
https://pubmed.ncbi.nlm.nih.gov/18762742/
29. República de Colombia - Ministerio de Salud y Protección Social. Telesalud y telemedicina para la prestación de servicios de salud en la pandemia por Covid-19 [Internet]. 2020 abril [citado 2020 septiembre 5]. Disponible en: https://www.minsalud.gov.co/Ministerio/Institucional/Procesos%20y%20procedimientos/PSSS04.pdf
30. SERMEF. CRISIS Covid-19 (SARS CO-2): Recomendaciones de la Sociedad Española de Rehabilitación y Medicina Física (SERMEF) sobre el impacto de la pandemia del coronavirus Covid-19 sobre los servicios de rehabilitación [Internet]. 2020 [citado 2020 septiembre 15]. Disponible en: https://www.sermef.es/recomendaciones-sermef-ante-covid-19/
31. Boldrino P, Bernetti A, Fiore P. Impact of Covid-19 outbreak on rehabilitation services and Physical and Rehabilitation Medicine (PRM) physicians’ activities in Italy. An official document of the Italian PRM Society (SIMFER). Eur J Phys Rehabil Med. 2020;56(3):316-318. Disponible en: https://doi.org/10.23736/S1973-9087.20.06256-5ht
32. McIntyre M, Robinson L, Mayo A. Practical Considerations for Implementing Virtual Care in Physical Medicine and Rehabilitation: For the Pandemic and Beyond. Am J Phys Med Rehabil. 2020;99(6):464–467. Disponible en: http://doi.org/10.1097/PHM.0000000000001453
33. Schiaritti V. Los derechos humanos de los niños con discapacidad durante emergencias sanitarias: el desafío de Covid-19. Dev Med Child Neurol. 2020;62(6)_e3-e4. Disponible en: https://doi.org/10.1111/dmcn.14529
34. Pulrang A. 5 Things to Know About Coronavirus And People With Disabilities. Forbes [Internet]. 2020 marzo 8 [citado 2020 septiembre 5]. Disponible en:
https://www.forbes.com/sites/andrewpulrang/2020/03/08/5-things-to-know-about-coronavirus-and-people-with-disabilities/ #224ac74c1d21
35. Bamm EL, Rosenbaum P. Family-Centered Theory:Origins,Development, Barriers, and Supports to Implementation in Rehabilitation Medicine. Arch Phys Med Rehabil. 2008; 89(8):1618-1624 Disponible en: http://doi.org/10.1016/j.apmr.2007.12.034
36. King S, Teplicky R, King G, Rosenbaum P. Family-Centered Service for Children With Cerebral Palsy and Their Families: A Review of the Literature. Semin Pediatr Neurol. 2004;11(1):78-86. Disponible en: http://doi.org/10.1016/j.spen.2004.01.009
37. Spittle A, Orton J, Anderson PJ, Boyd R, Doyle LW. Early Developmental Intervention Programmes Provided Post Hospital Discharge to Prevent Motor and Cognitive Impairment in Preterm Infants. Cochrane Database Syst Rev. 2015;(11):CD005495. Disponible en: http://doi.org/10.1002/14651858.CD005495.pub4
38. Longo E, de Campos AC, Schiariti V. Covid-19 Pandemic: Is This a Good Time for Implementation of Home Programs for Children’sRehabilitation in Low- and Middle-Income Countries? Phys Occup Ther Pediatr. 2020;40:4:361-364. Disponible en: http://doi.org/10.1080/01942638.2020.1759947
39. Novak I, Morgan C, Fahey M, Finch-Edmondson M, Galea C, Hines A, et al. State of the evidence traffic lights 2019: Systematicreview of interventions for preventing and treating children with cerebral palsy. Cur Neurol Neurosci Rep. 2020;20:3. Disponible en: http://doi.org/10.1007/s11910-020-1022-z
40. McWilliam R EIEIO and the routines-based model [Internet interview]. Evidence-Based International Early Intervention Office. 2020 [citado 2020 septiembre 5]. Disponible en: http://eieio.ua.edu/routines-based-model.html
41. McWilliam R. Tele-Intervention and the Routines-Based Model. Early Intervention in Natural Environments [Internet]. 2020:marzo 23
[citado 2020 septiembre 5. Disponible en: http://naturalenvironments.blogspot.com/2020/03/tele-intervention-and-routines-based.html
42. Plena Inclusión. Formación online abierta: Tele-intervención en Atención Temprana [Internet]. 2020:marzo [citado 2020 septiembre] Disponible en: https://www.plenainclusion.org/informate/actualidad/agenda/formacion-online-abierta-teleintervencion-en-atencion-temprana
2. Borg K, Stam H. Editorial. Covid-19 and Physical and Rehabilitation Medicine. J Rehabil Med. 2020;52(4):jrm00045. Disponible en: http://doi.org/http://doi.org/10.2340/16501977-2679
3. Amatya B., Khan F. Medical rehabilitation in pandemics: towards a new perspective. J Rehabil Med. 2020;52(4):jrm00043. Disponible en: http://doi.org/http://doi.org/10.2340/16501977-2676
4. Cheol Chang M., Park D. How should rehabilitative departments of hospitals prepare for coronavirus disease 2019? Am J Phys Med Rehabil. 2020; 99(6):475-476. Disponible en: http://doi.org/10.1097/PHM.0000000000001428
5. Silver J. Prehabilitation May Help Mitigate an Increase in Covid-19 Peri-Pandemic Surgical Morbidity and Mortality. Am J Phys Med Rehabil. 2020;99(6):459-463. Disponible en: http://doi.org/10.1097/PHM.0000000000001452
6. Flanagan S, Diller L. Dr. George Deaver: The Grandfather of Rehabilitation Medicine. Phys Med Rehab J. 2013;5(5):355-359. Disponible en: http://doi.org/10.1016/j.pmrj.2013.03.031
7. Deaver G. Physical Rehabilitation of disabled persons. N Engl J Med. 1947;236:311-314. Disponible en: http://doi.org/10.1056/NEJM194702272360902
8. Bronfenbrenner U. Una orientación ecológica. En: Bronfenbrenner U, editor. La ecología del desarrollo humano. Experimentos en entornos naturales y diseñados [Internet]. 1ª ed. Barcelona: Paidós Ibérica; 19 87 [cit ado 2020 julio 15]. p. 21-35. Disponible en: http://
proyectos.javerianacali.edu.co/cursos_virtuales/posgrado/maestria_asesoria_familiar/ familia_contemporanea/modulo1/la-ecologia-del- esarrollo-humano-bronfenbrenner-copia.pdf
9. Organización Panamericana de la Salud [OPS] - Organización Mundial de la Salud [OMS]. Clasificación Internacional de Funcionamiento, Discapacidad y Salud (CIF) [Internet]. 1a. ed. Washington: OPS; 2001 [citado 2020 julio 15]. Disponible en: https://apps.who.int/iris/ bitstream/handle/10665/43360/9241545445_spa.pdf?sequence=1
10. Organización Mundial de la Salud [OMS] - Organización Panamericana de la Salud [OPS]. Clasificación Internacional del Funcionamiento, de la Discapacidad y de la Salud - Versión para Infancia y Adolescencia (CIF-IA). [Internet]. 1a. ed. Washington: OPS; 2011 [citado 2020 julio 15]. Disponible en:
https://apps.who.int/iris/handle/10665/81610
11. Rosenbaum P, Stewart D. The World Health Organization International Classification of Functioning, Disability and Health: A Model to Guide Clinical Thinking, Practice and Research in the Field of Cerebral Palsy. Sem Pediatr Neurol. 2004;11:5-10. Disponible en: http://doi.org/10.1016/ j.spen.2004.01.002
12. Clapton J, Kendall E. Autonomy and participation in rehabilitation: Time for a new paradigm? Disabil and Rehab. 2002; 24:987 – 991. Disponible en: http://doi.org/10.1080/09638280210152058
13. Rosenbaum P. The environment and childhood disability: opportunities to expand our horizons. Develop Med Child Neurol. 2007;49:643. Disponible en: http://doi.org/10.1111/j.1469-
749.2007.00643.x
14. Liptak G, Murphy N. Providing a Primary Care Medical Home for Children and Youth With Cerebral Palsy. Pediatrics. 2011;128(5):e1321-e1329. Disponible en: http://doi.org/10.1542/peds.2011-1468
15. Glader L, Plews-Ogan L, Agrawal R. Children With Medical Complexity: Creating a Framework for Care Based on the International Classification of Functioning, Disability and Health. Dev Med Child Neurol. 2016;58(11):1116-1123. Disponible en: http://doi.org/10.1111/dmcn.13201
16. Law M, Darrah J, Pollock N, Rosenbaum P, Russell D, Walter SD, et al. Focus on Function - A Randomized Controlled Trial Comparing Two Rehabilitation Interventions for Young Children With Cerebral Palsy. BMC Pediatr. 2007;7:31. Disponible en: http://doi.org/10.1186/1471-2431-7-31
17. Ahl LE, Johansson E, Granat T, Carlberg EB. Functional therapy for children with cerebral palsy: an ecological approach. Dev Med Child Neurol. 2005;47(9):613-619. Disponible en: https://doi.org/10.1111/j.1469-8749.2005.tb01213.x
18. Löwing K, Bexelius A, Brogren Carlberg E. Activity Focused and Goal Directed Therapy for Children With Cerebral Palsy—Do Goals Make a Difference?. Disabil Rehabil 2009;31(22):1808-1816. Disponible en: https://doi.org/10.1080/09638280902822278
19. Quintero CA. Rehabilitation as an instrument of peace: The case of the committee of rehabilitation a non- government organisation in the city of Medellin- Colombia. World Federation of Occupational Therapists Bulletin. 2016;72(2):91-94 Disponible en: http://doi.org/10.1080/14473828.2016.1222156
20. Heerkens Y, Weerd M, Huber M, Brower C. The ICH scheme needs revision. WHO Family of International Classifications Network Anual Meeting 2015 [Internet]. Poster. Manchester, United Kingdom. 2015[citado 2020 julio 15]. Disponible en: https://www.who.int/classifications/network/WHOFICNetworkAnnualRport2015.pdf?ua=1
21. Darrah J, Law MC, Pollock N, Wilson B, Russell DJ, Walter SD, et al. Context Therapy: A New Intervention Approach for Children With Cerebral Palsy. Dev Med Child Neurol. 2011;53(7):615-620. Disponible en: http://doi.org/10.1111/j.1469-8749.2011.03959.x
22. Morgan C, Novak I, Dale RC, Badawi N. Optimising motor learning in infants at high risk of cerebral palsy: a pilot study. BMC Pediatr. 2015;15:30. Disponible en: http://doi.org/10.1186/s12887-015-347-2
23. Ziegler SA, Dirks T, Hadders-Algra M. Coaching in early physical therapy intervention: the COPCA program as an example of translation of theory into practice. Disabil Rehabil. 2019;41(15):1846-854. Disponible en: http://doi.org/10.1080/09638288.2018.1448468
24. Ketelaar M, Kruijsen AJ, Verschuren O, Jongmans MJ, Gorter JW, Verheijden J, et al. LEARN 2 MOVE 2-3: A Randomized Controlled Trial on the Efficacy of Child-Focused Intervention and Context-Focused Intervention in Preschool Children With Cerebral Palsy. BMC Pediatr. 2010;10:80. Disponible en: http://doi.org/10.1186/1471-2431-10-80
25. Morgan C, Novak I, Dale RC, Guzzetta A, Badawi N. Single Blind Randomised Controlled Trial of GAME (Goals - Activity - Motor Enrichment) in Infants at High Risk of Cerebral Palsy. Res Dev Disabil. 2016;55:256-267. Disponible en: http://doi.org/10.1016/j.ridd.2016.04.005
26. Rosenbaum P, Gorter JW. The ‘F-words’ in childhood disability: I swear this is how we should think! Child Care Health Dev 2012;38:457–463. Disponible en: http://doi.org/10.1111/j.1365-2214.2011.01338.x 4
27. Rosenbaum P, Gorter JW. Artículo relevante para el desarrollo de la especialidad: Las ‘Palabras-F` en discapacidad infantil: ¡Juro que así es como deberíamos pensar! Rev Col Med Fis Rehab 2014;24(1):16-26. Disponible en: http://www.revistacmfr.org/index.php/rcmfr/article/view/96/79
28. Rauch A, Cieza A, Stucki G. How to Apply the International Classification of Functioning, Disability and Health (ICF) for Rehabilitation Management in Clinical Practice. Eur J Phys Rehabil Med. 2008;44(3):329-342. PMID: 18762742. Disponible en:
https://pubmed.ncbi.nlm.nih.gov/18762742/
29. República de Colombia - Ministerio de Salud y Protección Social. Telesalud y telemedicina para la prestación de servicios de salud en la pandemia por Covid-19 [Internet]. 2020 abril [citado 2020 septiembre 5]. Disponible en: https://www.minsalud.gov.co/Ministerio/Institucional/Procesos%20y%20procedimientos/PSSS04.pdf
30. SERMEF. CRISIS Covid-19 (SARS CO-2): Recomendaciones de la Sociedad Española de Rehabilitación y Medicina Física (SERMEF) sobre el impacto de la pandemia del coronavirus Covid-19 sobre los servicios de rehabilitación [Internet]. 2020 [citado 2020 septiembre 15]. Disponible en: https://www.sermef.es/recomendaciones-sermef-ante-covid-19/
31. Boldrino P, Bernetti A, Fiore P. Impact of Covid-19 outbreak on rehabilitation services and Physical and Rehabilitation Medicine (PRM) physicians’ activities in Italy. An official document of the Italian PRM Society (SIMFER). Eur J Phys Rehabil Med. 2020;56(3):316-318. Disponible en: https://doi.org/10.23736/S1973-9087.20.06256-5ht
32. McIntyre M, Robinson L, Mayo A. Practical Considerations for Implementing Virtual Care in Physical Medicine and Rehabilitation: For the Pandemic and Beyond. Am J Phys Med Rehabil. 2020;99(6):464–467. Disponible en: http://doi.org/10.1097/PHM.0000000000001453
33. Schiaritti V. Los derechos humanos de los niños con discapacidad durante emergencias sanitarias: el desafío de Covid-19. Dev Med Child Neurol. 2020;62(6)_e3-e4. Disponible en: https://doi.org/10.1111/dmcn.14529
34. Pulrang A. 5 Things to Know About Coronavirus And People With Disabilities. Forbes [Internet]. 2020 marzo 8 [citado 2020 septiembre 5]. Disponible en:
https://www.forbes.com/sites/andrewpulrang/2020/03/08/5-things-to-know-about-coronavirus-and-people-with-disabilities/ #224ac74c1d21
35. Bamm EL, Rosenbaum P. Family-Centered Theory:Origins,Development, Barriers, and Supports to Implementation in Rehabilitation Medicine. Arch Phys Med Rehabil. 2008; 89(8):1618-1624 Disponible en: http://doi.org/10.1016/j.apmr.2007.12.034
36. King S, Teplicky R, King G, Rosenbaum P. Family-Centered Service for Children With Cerebral Palsy and Their Families: A Review of the Literature. Semin Pediatr Neurol. 2004;11(1):78-86. Disponible en: http://doi.org/10.1016/j.spen.2004.01.009
37. Spittle A, Orton J, Anderson PJ, Boyd R, Doyle LW. Early Developmental Intervention Programmes Provided Post Hospital Discharge to Prevent Motor and Cognitive Impairment in Preterm Infants. Cochrane Database Syst Rev. 2015;(11):CD005495. Disponible en: http://doi.org/10.1002/14651858.CD005495.pub4
38. Longo E, de Campos AC, Schiariti V. Covid-19 Pandemic: Is This a Good Time for Implementation of Home Programs for Children’sRehabilitation in Low- and Middle-Income Countries? Phys Occup Ther Pediatr. 2020;40:4:361-364. Disponible en: http://doi.org/10.1080/01942638.2020.1759947
39. Novak I, Morgan C, Fahey M, Finch-Edmondson M, Galea C, Hines A, et al. State of the evidence traffic lights 2019: Systematicreview of interventions for preventing and treating children with cerebral palsy. Cur Neurol Neurosci Rep. 2020;20:3. Disponible en: http://doi.org/10.1007/s11910-020-1022-z
40. McWilliam R EIEIO and the routines-based model [Internet interview]. Evidence-Based International Early Intervention Office. 2020 [citado 2020 septiembre 5]. Disponible en: http://eieio.ua.edu/routines-based-model.html
41. McWilliam R. Tele-Intervention and the Routines-Based Model. Early Intervention in Natural Environments [Internet]. 2020:marzo 23
[citado 2020 septiembre 5. Disponible en: http://naturalenvironments.blogspot.com/2020/03/tele-intervention-and-routines-based.html
42. Plena Inclusión. Formación online abierta: Tele-intervención en Atención Temprana [Internet]. 2020:marzo [citado 2020 septiembre] Disponible en: https://www.plenainclusion.org/informate/actualidad/agenda/formacion-online-abierta-teleintervencion-en-atencion-temprana
How to Cite
1.
Quintero Valencia CA. Pediatric rehabilitation in times of Covid-19: Challenges and opportunities during the pandemic. Rev. Colomb. Med. Fis. Rehabil. [Internet]. 2020 Sep. 9 [cited 2024 May 10];30(Supl):142-54. Available from: https://revistacmfr.org/index.php/rcmfr/article/view/252
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2020-09-09
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